Current Issues

Privacy and prejudice

Breathing Country was a nationwide public engagement programme about Electronic Patient Records (EPRs) and their use in medical research. A suite of activities were delivered as part of the programme, including the development and UK tour of a play and post-performance debate about EPRs, the provision of online supporting materials and a public attitudes research project.

This report presents the findings of the public attitudes research project that was embedded within the wider engagement programme to explore young people’s views on the development of an EPR system in the UK and its use in medical research. Some information was also collected on adult views. The research was conducted using electronic polling, focus groups, a two-day deliberative conference and a community researchers activity.

 

 

Updated July 2012

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